We are always surprised at how unaware a lot of people close to us are to the daily struggles that we face with Evie, we do not fault them for that, since they are not around us 24/7, it can just be discouraging and bring back our initial feelings (after Evie was diagnosed) of tremendous isolation.
Read MoreWe have been home for a week now, from our most amazing experience at Disney World with Make-A-Wish and we still miss it just as much as the day we left. Every part of Evie’s wish being granted was filled with so much thought and care by so many amazing volunteers and staff. The fact that these people spend their week nights and weekends getting to know a child in the most special way is something I am sure our little family will never forget.
Read MoreFriends and Family,
Thank you from the bottom of our hearts for all the love and support you have given and continue to pour out on us. We are beyond blessed. We wanted to pop in and not only thank you, but give you a little update on the girl we all love so much.
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