Living a life as wonderfully beautiful as possible.

Evelyn's Voice is a look into Evelyn’s life, as our family moves through a diagnosis of Rett Syndrome.  Rett Syndrome is an extremely rare genetic disorder that causes girls to lose their ability to use their hands, legs and speech.    We want to raise awareness for Rett Syndrome and share with the world, the beauty and the challenges, that this life entails. 

Our daughter, Evelyn, was diagnosed at three and a half with Rett Syndrome, and she most recently celebrated her 10th birthday.  Through Evelyn's Voice, we not only hope to use Evelyn's story to change people's lives, but to bring people together to live their best lives possible in spite of it all.  We are on a mission and we hope that you will join us on this journey.